We’re here to help answer any questions you may have about our programs. If you don’t find the information you’re looking for below, please feel free to contact us directly — our team is always happy to assist.
SSSF offers two registry options for clinicians:
The Surgeon Performance Program (SPP) Quality Improvement Registry is strictly for quality improvement purposes and no data collected will be used for research of any kind. All data is de-identified in dashboard reports.
The Database User Program (DUP) Research Database Registry is designed for clinicians interested in utilizing data collected for both quality improvement and research.
To join the SPP Quality Improvement Registry:
Visit our QI Registry page and follow the steps needed to get started. Click Here
Or contact us directly at sppassistant@ssshsg.org
To join the DUP Research Registry:
Visit our Research Registry page and follow the steps needed to get started. Click Here
Or contact us directly at sppassistant@ssshsg.org
Currently, this registry offers modules for Idiopathic Scoliosis, Neuromuscular Scoliosis, Spondylolisthesis, and Anterior Tether. Participants have the ability to choose which module to participate in, and each module has distinct inclusion criterias:
No; there is no cost to join and no annual participation fees at this time thanks to the generous support from our industry sponsor, Medtronic.
SSSF has obtained an independent IRB exemption waiving oversight: quality improvement projects do not meet the definition of research based on federal regulation 45 CFR 46. Submit to your local IRB if required by your institution.
Participating surgeons receive a dashboard report twice per year, with plans to increase this in the future.
SSSF has obtained an independent IRB exemption from WIRB waiving oversight: quality improvement projects do not meet the definition of research based on federal regulation 45 CFR 46. Utilize our centralized IRB exemption or submit to your local IRB if required by your institution.
Yes, a fully executed Registry Participation Agreement (RPA) is required prior to participation.
Participants agree to submit 5 consecutive cases per calendar year for each diagnostic module they wish to participate in for inclusion in and receipt of dashboard reports.
The cost for a yearly subscription to this registry is $5k.
Once you have received the protocol and case report forms, submit to your local IRB for approval to enroll patients from your site for studies related to patient populations you choose.
Subscribers will execute a Database User Program Services Agreement prior to utilizing this registry.
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